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Association for the Study
of Inborn Errors of Metabolism in Adults

  • Home
  • Current Issues
  • Meetings and Workshops
  • Information for Patients
  • Quality Management
  • Centres of Expertise
  • Partner Organizations
  • ASIM Travel Grant
  • Qualification as Specialist in Metabolic Medicine (ASIM)
  • ASIM Board
  • Membership
  • Literature

Partner Organizations

Patients’ Organizations and Initiatives
  • ACHSE e. V. (Alliance for Chronic Rare Diseases)
  • GGD e. V. (Society for Gaucher’s Disease, Germany).
  • DIG PKU e. V. (German Organization for Phenylketonuria and Related Metabolic Errors)
  • Deutsche Leberhilfe e. V. (German Liver Association)
  • Hämochromatose-Vereinigung Deutschland e. V. (Haemochromatosis Association Germany)
  • CholCo e. V. (Patients’ Organization for Patients Suffering from Familial Hypercholesterolemia and other Severe Genetic Errors of Lipid Metabolism)
  • SHG Glycogenose Deutschland e. V. (Patients‘ Initiative for Glycogenosis, Germany)
  • DSAKU e. V. (German Speaking Patients‘ Initiative for Alkaptonuria).
  • Ges. für Mukopolysacharidosen e. V. (Association for Mucopolysaccharidosis)
  • Dt. Ges. für Muskelkranke e. V. (German Society for Myopathic Patients)
  • VfASS e. V. (Organization for Inborn Errors of Metabolism)

Scientific Organizations
  • APS – Arbeitsgemeinschaft für Pädiatrische Stoffwechselstörungen (Working Group for Paediatric Metabolic Disorders)
  • DGIM – Deutsche Gesellschaft für Innere Medizin (German Society for Internal Medicine)
  • SSIEM – Society for the Study of Inborn Errors of Metabolism

Supporters/Funders

Kindly supported by

 

Nutricia_Metabolics_Logo
€ 2500 per year

Logo Sanofi Genzyme (002)
€ 2000 per year

 

SOBI_logo_payoff_RGB (003)
€ 2000 per year

 

Vitaflo_logo_CMYK
€ 1500 per year

 

Orphan_Europe_Corporate-2017
€ 1000 per year

 

Cambrooke CT_logo_HR - 2018
€ 1000 per year

 

metaxlogo_2246_cvc_4c1_1000px
€ 1000 per year

 

Schär, Dr. 02_REA_DRS_Logo_Claim_right_CMYK - 2018
€ 600 per year

 

lucane logo

€ 500 per year


Annual Meeting 2020 by ASIM & DGIM Inborn Errors of Metabolism in Adults - What are we Facing ? Save the Date!
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ASIM has issued statement on diatary advice by request of the G-BA
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ASIM Adopts European Recommendations for Phenylketonuria. Pressrelease.
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ASIM conducts talks with DIG-PKU to extend § 116b to adults.
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Book edited by patient organisation Glykogenose Deutschland. Fit for the Future: Information for Adolescents and Young Adults with Glycogenosis Type I
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Current Issues

Press Release: Rare Diseases - UKD-Physician Prof. Dr. Stephan vom Dahl receives German Cross of Merit

As an expert in rare metabolic diseases, he cares for patients from all over Germany at the University Hospital Düsseldorf (UKD). His volunteer commitment ...For more details, please see …

ASIM appreciates the longer-term funding of the NAMSE office

Petition successfulFor more details, please see …

Petition of the DIG PKU for the establishment of specialized medical outpatient clinics also for adults with rare metabolic disorders rejected

Adults with inborn errors of metabolism continue to have no legal claim to specialist medical care - § 116 b paragraph 2 of SGB V remains unchanged. The ASIM will continue to remain politically active in order to repeal this unfounded and absurd restriction in §116.For more details, please see …

Meetings and Workshops

2020

For more details, please see ...
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