Publication of new guideline "hepatorenal tyrosinemia" by AWMF
Another guideline on a very important metabolic disease published in cooperation with the ASIMFor more details, please see …
Partner Organizations
Patients’ Organizations and Initiatives
- ACHSE e. V. (Alliance for Chronic Rare Diseases)
- GGD e. V. (Society for Gaucher’s Disease, Germany).
- DIG PKU e. V. (German Organization for Phenylketonuria and Related Metabolic Errors)
- Deutsche Leberhilfe e. V. (German Liver Association)
- Hämochromatose-Vereinigung Deutschland e. V. (Haemochromatosis Association Germany)
- CholCo e. V. (Patients’ Organization for Patients Suffering from Familial Hypercholesterolemia and other Severe Genetic Errors of Lipid Metabolism)
- SHG Glycogenose Deutschland e. V. (Patients‘ Initiative for Glycogenosis, Germany)
- DSAKU e. V. (German Speaking Patients‘ Initiative for Alkaptonuria).
- Ges. für Mukopolysacharidosen e. V. (Association for Mucopolysaccharidosis)
- Dt. Ges. für Muskelkranke e. V. (German Society for Myopathic Patients)
- VfASS e. V. (Organization for Inborn Errors of Metabolism)
Scientific Organizations
- APS – Arbeitsgemeinschaft für Pädiatrische Stoffwechselstörungen (Working Group for Paediatric Metabolic Disorders)
- Rheinisch-Westfälische Gesellschaft für Innere Medizin (Rhenisch-Westphalian Society for Internal Medicine)
- DGIM – Deutsche Gesellschaft für Innere Medizin (German Society for Internal Medicine)
- SSIEM – Society for the Study of Inborn Errors of Metabolism
- Deutsche Gesellschaft zur Bekämpfung von Fettstoffwechselstörungen und ihren Folgeerkrankungen DGFF (Lipid-Liga) e. V. (German Association for the Prevention of Disorders in Lipid Metabolism and its Secondary Dideases)
- Nationale Allianz für seltene genetische Erkrankungen (National Alliance for Rare Genetic Diseases)
Supporters/Funders
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