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Association for the Study
of Inborn Errors of Metabolism in Adults

  • Home
  • Current Issues
  • Meetings and Workshops
  • Information for Patients
  • ASIM-Councils
  • Quality Management
  • Centres of Expertise
  • Partner Organizations
  • ASIM Travel Grant
  • Qualification as Specialist in Metabolic Medicine (ASIM)
  • ASIM Board
  • Membership
  • Literature

Patients’ Organizations and Initiatives

  • ACHSE e. V. (Alliance for Chronic Rare Diseases)
  • GGD e. V. (Society for Gaucher’s Disease, Germany).
  • DIG PKU e. V. (German Organization for Phenylketonuria and Related Metabolic Errors)
  • Deutsche Leberhilfe e. V. (German Liver Association)
  • Hämochromatose-Vereinigung Deutschland e. V. (Haemochromatosis Association Germany)
  • CholCo e. V. (Patients’ Organization for Patients Suffering from Familial Hypercholesterolemia and other Severe Genetic Errors of Lipid Metabolism)
  • SHG Glycogenose Deutschland e. V. (Patients‘ Initiative for Glycogenosis, Germany)
  • DSAKU e. V. (German Speaking Patients‘ Initiative for Alkaptonuria).
  • Ges. für Mukopolysacharidosen e. V. (Association for Mucopolysaccharidosis)
  • Dt. Ges. für Muskelkranke e. V. (German Society for Myopathic Patients)
  • VfASS e. V. (Organization for Inborn Errors of Metabolism)
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