Patients’ Organizations and Initiatives
- ACHSE e. V. (Alliance for Chronic Rare Diseases)
- GGD e. V. (Society for Gaucher’s Disease, Germany).
- DIG PKU e. V. (German Organization for Phenylketonuria and Related Metabolic Errors)
- Deutsche Leberhilfe e. V. (German Liver Association)
- Hämochromatose-Vereinigung Deutschland e. V. (Haemochromatosis Association Germany)
- CholCo e. V. (Patients’ Organization for Patients Suffering from Familial Hypercholesterolemia and other Severe Genetic Errors of Lipid Metabolism)
- SHG Glycogenose Deutschland e. V. (Patients‘ Initiative for Glycogenosis, Germany)
- DSAKU e. V. (German Speaking Patients‘ Initiative for Alkaptonuria).
- Ges. für Mukopolysacharidosen e. V. (Association for Mucopolysaccharidosis)
- Dt. Ges. für Muskelkranke e. V. (German Society for Myopathic Patients)
- VfASS e. V. (Organization for Inborn Errors of Metabolism)